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Sharing the Learning, Sharing the Evidence
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Capturing Patient Stories to Provide Evidence for Service Change
The CCM Demonstrator programme was keen to ensure that patients and carers are actively involved in decisions about their care, that they are engaged with and that their involvement sits at the heart of service planning and delivery. One way to address these issues was to adopt a patient story approach to service development and improvement.
What are patient stories?
Patient stories are where patients and carers are able to discuss their experiences to enable them to reflect on what has (and perhaps has not) happened to them. The stories are not
just a sequence of events but include the emotional effect of the experience and the story-tellers expectations and needs. Patients can provide a valuable insight into the quality of the healthcare they have received and their opinion of the services provided. The therapeutic benefits of this have long been recognised but there are also benefits for the service provider.
An Evaluation Paper has been written that sets out how the CCM Demonstrators captured evidence through patient stories across a number of CCM Demonstrator studies in North Wales, Cardiff and Carmarthenshire. This can be found below.
It begins with patient views before any service change with a view to identifying their perspectives following this and the introduction of new models of care.
CCM Demonstrator Evaluation Papers describe evaluation activities being undertaken by CCM Demonstrator sites. They describe studies to obtain evidence of new ways of working.